Dravet Navigator

Everything Dravet Syndrome families in Canada need, in one place. Emergency tools, funding, templates — offline, with no data collected.

Dravet Navigator is a free resource app built by a Dravet parent, for families navigating life with Dravet Syndrome in Canada. When your child is diagnosed with Dravet Syndrome, the information you need is scattered — across hospitals, government websites, Facebook groups, and word of mouth from other parents. Dravet Navigator puts it all in one place. Organized, practical, and parent-verified. FREE AND AD-FREE Dravet Navigator is completely free with no ads and no in-app purchases. Built to help families, not to make money. WHAT’S INSIDE ONTARIO RESOURCES Neurologists & Hospitals A guide to epilepsy programs, neurologists, and hospital teams across Ontario that families have real experience with. Funding Step-by-step guidance on Ontario funding programs — SSAH, Enhanced Respite, Passport, ACSD, and the Assistive Devices Program — with tips on how to apply and what to expect. Autism Resources for families navigating a dual diagnosis, including Ontario Autism Program information and community supports. Supports Community resources including respite care, developmental services, recreation programs, parent networks, and more. ACROSS CANADA Benefits Information on disability-related benefits available to Canadian families, including the Disability Tax Credit, RDSP, Child Disability Benefit, and Compassionate Care Benefits. Equipment Commonly used equipment among Dravet families — mobility aids, seizure safety devices, cooling vests, adaptive footwear, and medical equipment — along with funding options for each. Templates Fillable PDF templates designed for Dravet families, ready to print or complete on your device: · Current Medication List · Hospital Go-Bag Checklist · Emergency Protocol Card (wallet-sized) · Seizure Action Plan · Caregiver Information Sheet · IEP Meeting Prep Sheet Medications Information on medications available in Canada, questions to ask your neurologist, and a list of medications contraindicated in Dravet Syndrome. EMERGENCY TOOLS A real-time Seizure Timer with audio alerts at the 3-minute and 5-minute marks — audible even in silent mode, with the screen kept awake. When the timer stops, add quick notes while the details are fresh, and export them later. EMERGENCY INFO CARD Store your child’s medications, allergies, care team, and emergency contacts directly on your device. Designed for instant access with no barriers — because in an emergency, every second counts. OFFLINE & PRIVATE Everything in Dravet Navigator is available without an internet connection — critical for hospital settings where network access is unreliable. No data is collected. No information ever leaves your device.