Move-Up

The Move-Up app is an innovative tool designed to enhance the transition from paediatric to adult care for children and adolescents with juvenile-onset rheumatic and musculoskeletal diseases (jRMDs). This app prioritises the involvement of both young people with jRMDs and health professionals in shared decision-making processes, ensuring that young people are better prepared for the complexities of adult care. Through technology, the app facilitates intensive symptom monitoring and assessment of biopsychosocial factors, ultimately contributing to personalised evidence-based care and improved disease management, and thus increasing readiness for transfer to adult care for young people with jRMDs.

Key Features

-Intensive Monitoring: The Move-Up app allows for comprehensive monitoring of symptoms and biopsychosocial factors. Young people with jRMDs can record their data multiple times, providing a detailed and dynamic picture of their health status.

• Individualised Reports: Data collected through the app is used to generate individualised reports. These reports offer valuable insights into the patient’s condition, guiding treatment discussions and helping health professionals to tailor their approach to each patient’s individual needs.

• Shared Decision-Making: The app serves as a bridge between young people with jRMDs and health professionals, promoting collaboration and shared decision-making. By enhancing the health literacy of young people with jRMDs, they can use it during a shared decision-making process. Consequently, the app involves adolescents in their care journey, so that they are empowered to take an active role in managing their health.

• Improved Patient Readiness to Transfer: By actively involving young people with jRMDs in the monitoring and reporting process, the app enhances their understanding of their disease. This increased awareness and health literacy help adolescents transition more smoothly into adult care, equipped with the knowledge and skills necessary for effective self-management.

• Personalised, Evidence-Based Care: The app’s data-driven approach ensures that treatment decisions are based on comprehensive, individualised and real-time information. This contributes to personalised care evidence-based plans, which may improve treatment outcomes.

Move-Up app is a groundbreaking tool designed to address the unique challenges faced by young people with jRMDs as they transition from paediatric to adult care. By promoting shared decision-making, intensive monitoring, and the generation of individualised reports, the app enhances patient readiness to transfer, improves health literacy, and contributes to the provision of personalised, evidence-based care. With its user-friendly interface and comprehensive features, the Move-Up app is set to revolutionise the way young people with jRMDs and health professionals face the transition to adult care, ensuring a smoother, more informed, and more effective journey towards optimal health outcomes.