Features & Capabilities

The Ehlers-Danlos Society’s official app is a vital tool for anyone interested in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Whether you are personally affected or are a healthcare professional providing care, this app offers practical information and resources tailored to your needs.

Key features: • Helpful Resources: Information and resources to support you • Personal Health Profile: All your health information in one place • Symptom Tracking: Keep track of when you experience symptoms • Medication Reminders: Notification alerts to ensure you never miss a dose • Diagnostic Tools: Facilitating early and accurate diagnosis

You should check with a doctor before making any medical decisions based on the information provided in this app.

User Growth & Download Statistics

App
By:
The Ehlers-Danlos Society
Rating:
4.60
(36)
Version:
1.4.1 Last updated: 2026-06-03
Version code:
886481164
Creation date:
2024-10-16
Compatible devices:
Size:
102.77MB
URLs:
Privacy policy
Full description:
See detailed description
Source:
Apple Apps Store
Data ingested on:
2026-06-07
Compare stats and ranking:

Contact the developer

Chrome-Stats does not own this Apple app. Please use these information below to contact the Apple app developer.
Developed by:
The Ehlers-Danlos Society
Apple Apps Store
https://apps.apple.com/us/app/the-ehlers-danlos-society/id6642710534

User Reviews

Downloaded the app the other day. While testing it out, to learn how it works, I have found a few problematic bugs (mostly regarding time keeping) that make recording symptoms and user experience challenging. I find the concept for this app to be fantastic and much needed within the community, and will gladly increase my rating once the issues have been resolved. To start, when opening the app it will always bring the user to the initial “Welcome Page”. The user then needs to select an option to explore the resources and tools of the app, either “I’m an individual” or “I’m a healthcare professional”. This may be an intentional choice by the app developers, however when there is already an option to go between the two choices offered at the bottom of their selected page, there’s really no reason to keep landing on the welcome page when opening the app. In fact it makes for a smoother user experience to have the app open upon their last choice, and if they need to go back there’s always the “Home” button located on the navigation bar. For a community that experiences chronic pain, the longer it takes to reach the desired field input, the more likely pertinent information will be lost. Personally I don’t want to spend time and mental energy navigating an app when I’m experiencing symptoms. I just want the app to open within the “Tracker” page, so I can quickly input my symptoms, before the motivation gives out due to said symptoms. Is there a way to allow users to mark their preference for their ideal landing page? The following bugs all reside within the “Tracker” page: The next issue can be found when attempting to set up a “Weekly” schedule after the initial “Add Medication” is set up. Regardless of the weekly occurrence, the schedule will set itself as “Sun, Mon, Tue, Wed, Thu, Fri, Sat, Sun, … at 12:00”. The days continue off the page, while pushing the “Edit” button off as well. If you’re able to catch the side of the page at the right spot, then you’re able to access the edit button and go back in to “correct” the problem. However, when the new time is saved the reminder shows as 06:00a instead of 12:00p; the timing is off by -6 hr. The “Daily” and “Monthly” options mostly work as intended and their “Edit” buttons are easily accessible; however their reminder times are also off by -6 hr. Would adding an internal time zone preference to settings help mitigate this and following time issues? (The app seems to be overcorrecting GMT time by going in the opposite direction.) The next two issues can be found in “Track Something”. The first is found when inputing the time, regardless of what is being tracked. However, with this and the following occasions the time is +6 hr off. Therefore, when inputing any time after 17:59/05:59p it will be tracked on the in app calendar as having occurred on the following day. (The app calendar seems to going off of GMT time.) The second issue is that all “Other” symptoms are grouped together and placed under a “Custom” title. This makes it very hard to easily tally up occurrences or look at a glance, as you need to physically look through each date on the calendar to locate when they occurred. However, under the “Symptom” option all “Other” symptoms are tracked under their individual name. Could “Other” symptoms be universally tracked within the app under their individual name? As far as I have found, while testing everything out, the “Symptom” page seems to be working as intended. Patterns of days, times, moods, frequencies, and cross-occurrences seem to be tracking accurately. However, when viewing “Symptom” symptoms on the in app calendar, with a time stamp after 17:59/05:59p, they are tracked on the following day. Their time is also off by +6 hr. Again I think the concept of this app is fantastic, and would love to use it to consolidate all my tracking. However, the aforementioned bugs make that hard to implement due to accuracy and user experience. I do hope you’re able to resolve these issues.
by me*****, 2025-12-29

I love this app, the only issue I’ve stumbled upon is I’ll open it up and it’ll stay on the loading screen. I’ve learned that opening it, closing it, then opening it a second times does the trick! This is definitely not something I’d knock a star down for as it is easy to work around.
by Mu*****, 2025-12-09

I understand their intentions behind the app, but most things are incredibly buggy and crash (even after this latest update) or the links are broken. The app won’t even open majority of the time, it’ll just stay on the loading screen. Then, the reminder feature doesn’t have enough editing (like delete or pause etc) and gets bulky quick, and you can’t track what you have and haven’t taken for the day medication-wise. The symptom tracker is too limited, especially for having so many comorbidities. I like my Oura Ring for example, how I can create my own symptoms and tags and select from them, and then it tracks those and my other symptoms to see patterns, and I can print the results for my doctors. I just think this needed a lot more work before release.
by aE*****, 2025-11-22
View all user reviews ›

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