porqueViven: paliativos niños

Clear and accessible information for mothers, fathers, and caregivers of a child who needs pediatric palliative care. You're not alone here.

Pediatric palliative care supports children with life-limiting or life-threatening illnesses, and their entire family. It can last a long time and involve other treatments. This app brings together in one place what many families need to understand at the beginning and what's useful to have on hand at home.

What you'll find
Twelve articles organized into five sections:

Start here
• What does "palliative care" mean for a child?
• The team that will support you: who's who
• CAPPI, the building that the Fundación porqueViven is constructing in Madrid: the first comprehensive pediatric palliative care center in Spain

Caring at home
• Relieving pain at home: signs to watch for and when to call
• Respite care for family, because resting is also caring

Supporting yourself
• Siblings matter too
• Taking care of yourself is also caring
• Who can help us when we can't go on anymore? • What is a Psychosocial Support Team (EAPS)?
• “Nano and Choco,” a 3:54 short film to watch together, whenever you want

Grief and Saying Goodbye
• Grief doesn't follow a schedule

Resources and Procedures
• Disability and Dependency: the two keys that unlock support

Each reading lasts between 2 and 5 minutes and uses simple language.

Search and Filter
In the search bar, you can type a topic (siblings, grief, support, etc.) or filter by section to go directly to what you need right now.

Offline and without an account
• The texts, search, and filters work offline, even without a signal.

• You don't need to register or provide personal information. What you type in the search bar is not saved or sent.

• The short film plays through YouTube and requires an internet connection. Before opening it, a message informs you that it deals with a child's illness and passing, so you can decide when to view it.

What this version doesn't do:
It's the public information area: it doesn't allow you to consult medical records or manage a family's care.

Important information: The app is intended for adults. It is not a medical device: it does not diagnose, treat, cure, or prevent diseases, and its information does not replace the advice of your healthcare team. If you have any questions about your child's health, consult their healthcare professionals. In an emergency, call 112.

About porqueViven: An app from the porqueViven Foundation, dedicated to pediatric palliative care and currently building the CAPPI in Madrid. Published by its technology provider, Proportione, LDA.