CTNNB1 Syndrome Network

CTNNB1 Syndrome Network is designed to support families navigating CTNNB1 Syndrome, a rare genetic condition.

Stay connected with the CTNNB1 community through the latest news, upcoming events, educational resources, conference presentations, podcasts, publications, and information from CTNNB1 parent-led nonprofit organizations.

Save useful resources, news, and events so you can easily find them again, and access supported content even when your internet connection is limited.

Explore the Parent Toolkit for quick, practical information that can be shared with doctors, teachers, physiotherapists, and others supporting someone with CTNNB1 Syndrome.

View upcoming community events and add them directly to your calendar. Receive notifications when important updates are available.

Ask our chatbot questions about CTNNB1 Syndrome and find relevant information from CTNNB1 organizations and resources.

CTNNB1 Syndrome Network does not provide medical advice, diagnosis, or treatment. Consult qualified healthcare professionals for medical guidance.