florio PNH

florio PNH is your digital companion designed to support people with paroxysmal nocturnal haemoglobinuria (PNH) in their daily routines. The app allows you to set up a personalised PNH diary, log medications, blood values, and outcomes of PNH, such as fatigue, pain, dark urine, etc. Reminders can help you in managing your PNH routine. Historical data and observed changes over time are summarised in a clear and visual format designed to help you to better understand your condition and help facilitate meaningful discussions with your healthcare team to inform your care. In addition, aiming to improve PNH care, your non-identifiable data may contribute to medical research. Please note that the application does not provide specific treatment recommendations to alter a previously prescribed treatment or therapy.