Suivi Porphyrie

The Suivi Porphyria application is dedicated to monitoring your porphyria.

On this application, a crisis questionnaire allows you to declare your porphyria attacks, whether they are ongoing or completed.

A symptom questionnaire allows you to report any chronic symptoms you may suffer from other than attacks, as well as your treatments for porphyria.

The information provided on the application can be transmitted to your prescribing doctor in order to establish a link with the CRMR Porphyries.

You also have the possibility to plan all your medical appointments using a calendar.

Finally, the Suivi Porphyria application provides you with important information and contacts for monitoring your illness.