COMJUNTOS

EHealth 2018 Award - eHealth Awards 2018 to the best app for patients.

COMJUNTOS is an app that helps families who have a child with a rare disease to travel through the main communicative situations with health professionals. The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report or they must perform a medical test. Each challenge includes a video with real testimonies from affected families and health professionals, a hypertext that explains the situation and anticipates any doubts that may arise, a basic dictionary of medical terms, and information on tips, resources and links.
Linguists, psychologists and physicians from the Universitat Pompeu Fabra, the Open University of Catalonia and the Clinical and Molecular Genetics Area and the Rare Diseases Unit of the Hospital Vall d'Hebron have participated; besides having the participation of the Spanish Federation of Rare Diseases (FEDER) and of several associated families. It has been developed within the framework of the RercerCaixa JUNTOS project.