# TheRareLens

> Research Equity, Visualized

Canonical page: [https://chrome-stats.com/d/id6784095604](https://chrome-stats.com/d/id6784095604)

## Overview

- **ID:** `id6784095604`
- **Platform:** Apple
- **Type:** Apple app
- **Status:** Available
- **Publisher:** Aditi Kishore
- **Category:** Education
- **Version:** 1.0
- **Last updated:** 2026-07-03
- **First published:** 2026-07-03
- **Size:** 42 MB
- **Data as of:** 2026-09-22
- **Store listing:** [Apple App Store](https://apps.apple.com/us/app/therarelens/id6784095604)
- **Website:** [https://therarelens.com](https://therarelens.com/)
- **Privacy policy:** [https://therarelens.com/privacy](https://therarelens.com/privacy)

## Description

See how research funding stacks up against real patient burden for rare & autoimmune diseases powered by live NIH and PubMed data.

RareLens: Research Equity for Rare Diseases

The Problem
Over 7,000 rare and autoimmune diseases exist but fewer than 5% have an approved treatment. Research funding from the NIH often doesn't reflect how many people a disease affects or how severely it impacts their lives. Patients wait years for a diagnosis. Researchers don't know where the biggest gaps are. Advocates don't have the data to make their case. RareLens changes that.

Who It's For
— Patients and caregivers who want to understand where their disease stands in the research landscape
— Scientists and clinicians looking for high-impact, underserved areas to direct their work
— Patient advocates building the case for more funding
— Students and researchers exploring rare disease epidemiology and health equity

How It Works
RareLens pulls live data from NIH Reporter, PubMed, and ClinicalTrials.gov to score every disease across two dimensions:

• Research Score: how much NIH funding and published science exists for a disease
• Patient Burden Score: how prevalent the disease is and how severely it affects quality of life

The difference between the two is the Gap Score a single number that tells you exactly how underfunded a disease is relative to the burden it places on patients.

Features
— Live gap scores and funding trends for rare and autoimmune diseases
— Disease profiles with NIH funding history, active clinical trials, and recent publications
— Year-over-year funding change tracker to catch emerging shifts in research investment
— Bookmark and track the diseases that matter to you
— Search any disease, even one not in our catalog and get a full score within seconds

The Science Behind It
Every score is formula-based, sourced from public government data, and fully reproducible. RareLens was built on a peer-reviewed methodology grounded in NIH Reporter, Orphanet prevalence data, and the Global Burden of Disease Study 2021.

This is not a curated list. This is a live, data-driven map of where science is and isn't showing up for patients.

## Rankings

- #1,541,471 — Overall

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Source: [Chrome-Stats](https://chrome-stats.com/d/id6784095604)